Angelica Grace Designs Blog

Tuesday, December 22, 2009

PRAYERS FOR ALICEN WOOLEY

I don't typically put "prayer requests" on my AGD blog anymore because I now solely use the AGD PRAYER BLOG for those. However, this little girls Mommy (Christina) is a dear, sweet, blog reader of mine and has been for as long as I can remember. We've exchanged many a conversations back and forth about our special needs babies. Our precious daughters. Christina is an incredible Mother and has strength like nothing I've ever seen. She has endured many scary hospital events with her daughter, Alicen, but this most recent one was bad. It has by far been the worst yet. My heart aches for her always but especially now - during the Christmas season. I am begging for your prayers for Christina and her beautiful daughter Alicen. (shown below) I'm also asking that if you should have the time, please stop and send Alicen an e-card via her hospital so that Christina can continue "wrapping her room." The instructions for how to send a quick e-card are shown below. It takes mere seconds. Please read Alicen's story below written from Christina's perspective this morning...

Here is some information on the angel baby, or who I affectionately call TURKEY TOES...

Alicen was born 4 months premature weighing only 1 lb and 13 ounces. She was in the NICU at Carle Foundation Hospital in Urbana Illinois for 111 days. She has since been diagnosed with many disabilities. They include Cerebral Palsy, Epilepsy, Plagiocephaly, Bronchial Pulmonary Dysplasia, Chronic Asthma, Chronic Pneumonia, Dysphasia (failure to thrive), she has a JG feeding tube, she feeds continuously through the night from 5pm through 6am. She is legally blind, she cannot walk, sit up, roll, but boy does she kick and holler like a trooper. She so vocal that she lets everyone know that she is here, bless her soul. That saying (NOT BEING ABLE TO SPEAK IS NOT THE SAME AS NOT HAVING ANYTHING TO SAY) truly suits her to a great big capital T. Anyway, she is totally dependant on us for all of her needs, she is wheel chair dependant. I had a nurse tell me at one point that it looks like Alicen was swimming in a dry puddle because she is constantly kicking and going is circles, how cute is that?

Her favorite tv show is (are you ready for this??) The Young and the Restless soap opera, she giggles all the way through it. We have to turn the volume almost all the way up in order to hear it ourselves. She also LOVES the commercial for Hillshire Farm, Go Meat, I say hillshire you say farm. She giggles when she hears it. She had had Many many hospital stays in her short life and she comes out of the hospital just as happy as she was before she got sick. This child has to be the happiest baby in the world, and by far the most beautiful little red head as well.

On Tuesday December 15, 2009 though, she was taken to Sarah Bush Lincoln Hospital emergency room by ambulance and within an hour of arrival she intubated and put on a ventilator due to respiratory distress, her O2 level was at 56 and her heart rate was way over 200. The arranged to have her air-lifted and St. Johns sent their helicopter team to Mattoon. They could not get her stabilized for almost 2 hours so they could transport her. I have never been more scared in my life. The helpless feeling a mother has to watch her daughter laying in a hospital bed is bad enough but the feeling I had watching her almost die is totally indescribable, something I would not wish on anyone.

At this time December 22, she remains at St. Johns Children’s Hospital in Springfield, Illinois. She is in a paralytic coma and is very heavily sedated. They are taking xrays each day and they are showing small improvements, Praise God. We need so many prayers for her right now. God has given her doctors the knowledge to treat her but it is God who will heal her and I firmly believe that. My husband, Derald, is laid off so at this time he is staying at the hospital and I go up every couple days to be with her so he can go home. I'm out of vacation and sick time at work so when I'm gone it is without pay. We cannot get Alicen on Social Security because they say we make too much money, can you believe that? Me neither.

Beings that Alicen is still in the hospital, I'm doing what I am calling “WRAP THE ROOM”. Anyone can go on the hospital web site and send her an e-card and I'm hanging all of them in her room. I've also decorated her room with Christmas decorations. She has never been away from home on Christmas before and I want to make it as much like home that I can. Your readers can send an e-card to her by following these steps: Go to St-Johns.org, click on children’s hospital, click on send an e-card. Fill out the card with her info. Her full name is Alicen Wooley and her room number is the "Pediatric ICU." This is such a simple thing to do and it doesn’t cost a cent but will make such a difference to Alicen.

Angie, I can literally feel the love that you have inside you as well as the love your blog followers have in them. I'm asking with all that I have inside me for prayers and thoughts for Alicen. (And the e-cards will be nice too!) Thank you for all that you do and most importantly, thank you for your prayers.

Christina (a preemie mom)

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9 Comments:

Anonymous Patti (Angie's Aunt) said...

Dear Angie,
I will pray for her and her family.
Love Patti

12/22/2009 12:18 PM  
Blogger katy said...

Sent an ecard...thanks for sharing this... not only at Christmas, but especially at Christmas we should remember how blessed we are, and offer help to others, whether it be financially, physically volunteering, or through prayer...thanks for the reminder!

12/22/2009 12:45 PM  
Blogger Stacey Moore said...

just sent a card to this sweet little girl!

12/22/2009 12:53 PM  
Anonymous Anonymous said...

Angie,
Thanks for sharing Alicen's story with us so that we can wrap her room in God's Love and her whole family in our prayers.

Mrs. Jennifer

12/22/2009 1:40 PM  
Blogger mellybean said...

Thank you for posting and sharing this family's story. Just sent her a card!

12/22/2009 2:23 PM  
Blogger Tonia Hobbs said...

Thank you for sharing. My heart hurts for this family. I sent her a card.

12/22/2009 5:42 PM  
Anonymous Jen Gaskill said...

Hey Angie - thank you for sharing Alicen's story with us. Just sent her an ecard and will lift her up in prayer.

-Jen

12/22/2009 7:48 PM  
Anonymous Mommy said...

I sent the card, hope to the right Hospital, it said st johns even after I clicked on Childrens hospital, but did allow me to send, won't get there till tomorrow, since it is after 2:00 pm. God Bless this Family, also Angie I am praying for our little Kenidi. God Bless, XOXOXOX

12/22/2009 7:57 PM  
Blogger Kristin said...

What a beautiful little girl! I hope she is feeling better soon. I'm just now reading this, and I hope she's feeling better already. I sent her an e-card. I thought it was funny because I am a faithful Y&R fan and my girls have always loved that Hillshire Farms commercial! LOL! Hope you had a wonderful Christmas, Angie, and that Kenidi is feeling much better!

12/26/2009 1:42 AM  

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